Welcome to I AM RUPERT
This is Rupert a.k.a Roopop
The condition is often noticed early in life. A baby may seem ‘floppy’ and could have feeding problems (the muscles in the throat used in swallowing might not be working properly).
Soon afterwards tightness of the muscles (spasticity) might emerge or more jerky chaotic movements (dyskinesia).
Often a child with cerebral palsy will fail to achieve the expected ‘milestones’ of development and their movement patterns are unusual (such as fisted hands or stiff pointed ankles) as though they are trying to walk on tiptoe. Some will go on to have difficulty walking.
Other problems can include speech and feeding difficulties, balance and co-ordination problems, hearing and sight problems and learning difficulties.
Between a quarter and a third of children and adolescents are also affected by epilepsy.
There are three main types of cerebral palsy:
- Spastic cerebral palsy which affects muscle tone. Muscles can become very stiff and weak.
- Dyskinetic cerebral palsy where muscle tone can fluctuate.
- Ataxic cerebral palsy which is the least common and means movements are often jerky and balance is poor.
Different parts of the body can be affected:
- Hemiplegia means just one side of the body.
- Diplegia is where the legs are more affected than the arms.
- Quadriplegia (also called four limb/total body involvement) is where both arms and legs are affected. Quadriplegia is usually the most severe in terms of other problems co-existing.
The conditions don’t progress – in other words brain damage doesn’t get worse – but a person’s physical capacity can change over time.
"What if I fall?" Oh, but my darling What if you fly