Welcome to I AM RUPERT

This is Rupert a.k.a Roopop

There isn’t a cure for cerebral palsy. It isn’t yet possible to repair damage to the brain. However there is a lot that can help a child cope with the condition, and to prevent complications (such as deformities or contractures) from happening.

Care is usually co-ordinated through a developmental paediatrician as part of a child development team, where therapists and doctors work together. If there are many professionals involved, a key worker may help with this.

Physiotherapy is usually the first line in treatment. Specific exercises will help keep a child’s muscles flexible.┬áMonitoring of hips and spine is often indicated and sometimes an orthopaedic surgeon is needed if complications develop.

Medication can help control spasms in the muscles and help joints to move more freely. If a child has seizures, these can be controlled with the help of anticonvulsant medication.

Botulinum toxin injections can be useful for some children with cerebral palsy. This helps specific muscles relax so they become less stiff, enabling a child to move around more easily and comfortably.

A specialised speech and language therapist will be able to help with any speech problems, and also with difficulties relating to feeding and swallowing.

An occupational therapist might also become involved if the child needs special seating or equipment.

Problems with hearing or sight can be helped by means of hearing aids or glasses.

"What if I fall?" Oh, but my darling What if you fly

Support Rupert

The next fund raiser for Rupert is happening on September 15th by Ruperts Dad, Paul. He will be cycling 284km, 1km for each day that Rupert spent in neonatal intensive care unit (NICU) and 1km for each day we missed George. The route has been chosen wisely to go through the National Forest between Seville and Granada. The trek is to take around 3 days and all proceeds and donations go to Rupert to fund his on going treatment. You can see more about Rupert's treatment here