Symptoms

Welcome to I AM RUPERT

This is Rupert a.k.a Roopop

No two people will be affected by dystonic cerebral palsy in the same way. A child with this type of cerebral palsy can appear restless and constantly on the move. The muscle spasms may cause twisting, repetitive movements or abnormal postures (dystonia) abrupt, irregular, jerky movements (chorea) or slower sinuous movements (athetosis) or sometimes a combination of these movements (choreoathetosis). The child may also have difficulty holding him / herself upright when sitting or walking.

The child may also have difficulty controlling movements of the face, tongue, lips, jaw, throat and muscles of respiration. This will affect someone’s facial expressions, speech, eating, drinking and saliva control.

The abnormal movements often increase with raised emotions, such as excitement or stress.  Relaxation can help reduce these symptoms. The movements usually disappear completely when a person is asleep.

"What if I fall?" Oh, but my darling What if you fly

Support Rupert

The next fund raiser for Rupert is happening on September 15th by Ruperts Dad, Paul. He will be cycling 284km, 1km for each day that Rupert spent in neonatal intensive care unit (NICU) and 1km for each day we missed George. The route has been chosen wisely to go through the National Forest between Seville and Granada. The trek is to take around 3 days and all proceeds and donations go to Rupert to fund his on going treatment. You can see more about Rupert's treatment here